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The Latest Autism Society of America Newsletter

Parents as Partners Workshop

February 22, 2010
Normal Community West IMC
6 - 8 PM
 
Agenda:
 
Literacy and Reading: 6 - 7 PM
What Are We Doing in Unit #5: What Can I do at Home
Elementary: Toni Eckley, RtI interventionist
Middle School: Rexie Lanier, RtI Coach
High School: Mary Walker, RtI Coach
 
We want to provide information on our current reading practices and approach within the district at each level. The presenters have been receiving training and supporting teachers through the year. They will explain our reading direction and give parents ideas on how they can support their children/young people at home.
 
Student Led IEP’s: 7 - 8 PM
Transition Planning and student involvement: Carrie Chapman, Secondary Specialist
 
We have been working to assure that we meet the needs of students with IEP’s in high school as they leave school and enter the adult world. Carrie will give an overview of our approach for this and talk about how we work with students to prepare them for this process. She will answer questions and give parent information on how they can help in this process.

 

 

Be a Hero

The AOK Network (a program of the Health Department), The Baby Fold, The Children’s Foundation, and other, local organizations are offering parents an opportunity to attend a Parent Leadership Training.  This training provides parents a chance to connect more fully with other parents, learn more about local opportunities, and enrich family and community activities.  (Please see below and attached flyers.)
 
The goal is to help support healthy parents who feel strong and confident in their role as a parent and are able to be parents in a less stressful, more successful and meaningful ways.  Parents can learn to grow and understand the opportunities they have to speak up for their kids in whatever community they are in, whether that be schools, faith, child care, or the larger community.  The intent to help families find a larger voice within the McLean County community.
 
There is only one commitment for the training.  If a person plans to attend, it's asked that they attend four sessions.  Couples are not obligated to attend together; thus one parent may attend the training without the other.
 
The training is free to parents who live in McLean County.  It is open to anyone parenting a child of any age; including foster parents, grandparents raising grandchildren, and relatives raising other’s children.  Lunch and snacks will be provided.  Parents who live outside of McLean County are welcome as well; it will be asked they pay a small cost to cover food and materials.
 
To make your reservation, please call (309) 888-5539 or email Maureen.sollars@mcleancountyil.gov.

The Penguin Project

What is the Penguin Project?
The Penguin Project is a group of individuals who take to the stage to perform a modified version of a well-known Broadway musical. This production is unique, however, because all of the roles are filled by individuals with disabilities. Performers with disabilities are paired with same age peer mentors who support them throughout the rehearsal and performance schedule.
 
PARTICIPANTS:
Artists with Disabilities
The Penguin Project is open to any individual age 8 to 30 with a disability.  This includes all disabilities (ie - cognitive, learning, motor, hearing and visual impairments, genetic disorders, neurological disorders).
 
Peer Mentors
The Penguin Project utilizes a “peer mentor” system, linking each artist with an age level peer who does not have a disability. The peer-mentors work side-by-side with their partners, assisting them throughout the entire rehearsal process and on stage.
 
Community Partners
In McLean County a core group of individuals from Bloomington Parks and Recreation, Kiwanis Club of Normal, Easter Seals and the community joined forces to present the first Penguin Project of McLean County production in June 2009. Annie Jr. was performed June 19 – 21.
 
Be a Penguin!
Producer Donna Anhalt, Director Tricia Stiller, and their staff invite all interested actors, mentors, and volunteers to become a member of the Penguin Project McLean County family. Informational meetings for this year’s production, Music Man Jr., will be held on February 4 and 9 at 7:00 pm at Central Catholic High School. Rehearsals will begin in March and the production will take to the stage June 17 – 20.
 
Join us for an Informational Meeting on Feb. 4 or Feb. 9 at 7:00 pm at Central Catholic High School’s auditorium. Call Tricia at 242-0290 or Donna at 838-2923 or visit us at www.penguinprojectmcleancounty.org for more information.
 
 
 

Young Horizon

Twin Cities Behavioral Health has launched a new website at www.younghorizon.com.  Young Horizon is an interactive online psychiatric portal dedicated to educating the public about child and adolescent mental health and wellness. Designed and maintained by Dr. Faisal Ahmed, this site provides scientifically accurate and up-to-date information while maintaining an independent editorial stance.

Check out the web site here: www.younghorizon.com.

Upper Limits Rock Climbing Pictures

Pictures from the 12/29/2009 Upper Limits Rock Climbing event are now up on the web site.  Check them out here: http://www.autismmclean.org/rockClimbing09
 

 

High School Students with High Functioning Autism/Asperger Syndrome with College Transition Goals Needed for Research Study

Why?

To interview your child about his or her upcoming transition from high school to community college or university

To do what?

To participate in 2 interviews. The first interview will last 45-60 minutes and the second interview will last 15-20 minutes. 

If interested contact Stephanie DeSpain at snbaker@ilstu.edu or (815)275-7178 by January 15, 2010

Participation in this study is voluntary and you may withdraw from the study at any time with no penalty or loss of privileges.  Your name and identifying information will not be mentioned in the study.  Every measure possible will be taken in order to honor and protect your confidentiality.  The purpose of this study is to identify how to better prepare students with disabilities for college. All information will be kept confidential.

Research at Illinois State University that involves human participants is carried out under the oversight of the Institutional Review Board.  Questions or problems regarding these activities should be addressed to IRB Chairperson, Research and Sponsored Programs Office, Campus Box 3040, Normal, IL 61790-3040, or phone (309) 438-8451.

More than 1,000 People Meet to Advance the Future of Adults with Autism

On November 13, 2009, the Advancing Futures for Adults with Autism (AFAA) National Town Hall was held with the support and participation of OAR. For this, the first such meeting of its kind, more than 1,000 family members, professionals, adults on the spectrum, and community members gathered simultaneously, via live webcast, at 15 satellite locations across the country, as well as through an online virtual site.
 
Local representation from Illinois Wesleyan, Easter Seals, ISU along with David from the Autism Society participated in this event.  More info: http://www.researchautism.org/resources/newsletters/2009/December_2009.asp#one

Mission to Mars Event

Information:
 
The mission is a parent/child mission Ages 10+. 

We can take 15 parent/child teams. Registration will be limited to the first 15 parent/child teams that sign up.

Cost:  $30 per Parent Child team. **Parents are encouraged to check out the website:  www.challengerlearningcenter.com

The mission will take place on Saturday February 27th 9:00-Noon, REGISTRATION CLOSES on February 12th, hurry only 15 spots available.

 
To register for this event, please click here: https://member.autismmclean.org/Events/MarsMission/RegQty.php

Also--the teams that register MUST attend a mandatory information night on February 18th from 7:00-8:00 at Challenger Learning Center to receive informational packets and be assigned their jobs for the mission. At the informational meeting the parents will also be able to hear more about the mission and discuss how our mission may be best tailored to meet the needs of the children attending. Example--there are lights flashing and sirens beeping during the mission and they will want to know if any of these things may need to be modified  so that it can be a successful mission for all who attend.

We are very excited that we can partner with CLC to offer this to our ASMC kids!!! Anyone who has questions can email me or look on CLC website: www.challengerlearningcenter.com

** For those that may not know....Challenger Learning Center will be in a new location for our mission. It will be located at Heartland Community College in Normal.

Date: 
02/27/2010 - 9:00am - 12:00pm

U.S. Autism Prevalence Rises 57% in 4 Years

The U.S. Centers for Disease Control and Prevention (CDC) released their national autism prevalence report today, confirming that the prevalence of autism spectrum disorders in the United States is 1 percent of the population, or one in 110 of children 8 years of age in 2006.
 
The long-awaited report was conducted by the CDC’s Autism and Developmental Disabilities Monitoring Network in 11 sites in 2006 and tracks prevalence in children 8 years of age. The Autism and Developmental Disabilities Monitoring (ADDM) Network is a group of programs funded by CDC to determine the number of people with autism spectrum disorders (ASDs) in the United States. The ADDM sites all collect data using the same surveillance methods, which are modeled after CDC’s Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP).
 
“This report confirms what we at the Autism Society have been saying for years about the prevalence of autism in America and the critical importance of early identification and interventions. For the first time, we are hearing our government acknowledge the real increase in autism and validating the impact this condition has on individuals, families and their communities,” said Lee Grossman, Autism Society President and CEO. “The question still remains: How bad does it have to get before families receive appropriate lifespan services?”
 
The entire summary can be viewed here, at the Autism Society website.  Here is the link to the CDC study.
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